August 25, 2008

Got back from my weekly checkup/followup from last week's fat & painful legs incident, and everyone was pleased to see that the treatments (and the resulting easier ability to move around) have greatly improved things. My white blood count, which has been out of control, even dropped down to more normal levels, probably as a result of the treatment (which means my muscles ache a lot less).

Still, it was something of a whirlwind this morning. We were stunned to arrive home before noon. (Everything, including traffic, aligned, so we had almost zero wait time for everything. This is unheard of.) So I'm a bit tired, and need to lie down before this afternoon's planned whirlwind, which you'll be hearing about later.

But when I casually glanced at previously missed news item, I couldn't let it pass. The Guardian reported on Wednesday that Adrian "Baldy" Sudbury died the night before. We've written on Adrian a few times before in passing (mostly in relation to the bone marrow donor clinics centred around him in one way or another), and his excellent Baldy's Blog has always been a delight to read, though I've never had the time to read it in the depth that I'd like.

Many people don't hear about bone marrow transplants until they or someone they know needs one. Many people, when they find out about them, try to inform as many people as possible. The Internet and its many communication services make this easier even for people without a communications background, and those of us who do also jump in if we feel we need to.

Because of our different backgrounds, different ages, and different situations, we jump into these things differently, but there's an underlying sentiment I noticed early on that I articulated a few times when talking to the press or other activists: we're all in this together. When we make these efforts to help ourselves, our friends, or our families—in short, no matter how personal the motivation—we help each other as well as future people who will need recipients. It's selfish and selfless at the same time, and many of us quickly realize that.

Even among all of our stories, Adrian's was remarkable. Here was someone who, after a time, consciously decided to stop treatment—in effect, removing the possiblity of any selfish motivation—and threw himself even harder into his activism with the time he had left. And he made excellent use of his time, meeting with PM Gordon Brown and speaking out about proper awareness and understanding of the bone marrow registering and donation procedures in schools, so that people would be better informed when they were old enough to make the choice to register.

And in every picture of him, in every word he wrote, he was smiling. Adrian's done a lot, and I think that even now that he's gone, he'll continue to do a lot. I've never met him, I've never spoken to him, I've never e-mailed him. I miss him terribly.

Labels: ,

posted by Emru Townsend at  | 2 Comments | Links to this post

June 18, 2008

Today's bone marrow clinic in Huddersfield, UK was deemed a success by organizers attracting 53 people. This is the first clinic inspired directly from the challenge of Adrian "Sudders" Sudbury to educate people about bone marrow registration and donations in the short time he has left to live, after being treated unsuccessfully for two different types of leukemia (he is the only known person to have two forms simultaneously).

Two more drives will be occurring in July.

If you live in the UK or are an ex-pat, you may also be interested in signing the official 10 Downing Street e-petition before July 23, 2008 to fulfill Adrian's wish to see the basics of bone marrow donation and registration taught to teenagers in school as part of the curriculum. Please sign it only if you are from the United Kingdom.

Sign the petition

Labels: , , , ,

posted by Tamu at  | 0 Comments | Links to this post

May 25, 2008

Another newspaper is getting behind Adrian Sudbury, and organizing a bone marrow drive (or as they're called in the UK, donor clinics). This one is in Sudbury's home town of Huddersfield. From the Huddersfield Daily Examiner:
To make it easy for Examiner readers to join the register we have organised a clinic which will take place at Huddersfield Methodist Mission on Lord Street from 2pm until 7pm on June 18.

Labels: , ,

posted by Emru Townsend at  | 0 Comments | Links to this post

May 24, 2008

From BBC News:
The Anthony Nolan Trust is holding a clinic for people who want to register for bone marrow donation on 31 May at Tiger Tiger, 28-29 Haymarket, Piccadilly, London from 1100-1600.

Labels: , ,

posted by Emru Townsend at  | 0 Comments | Links to this post

You may have heard of Adrian Sudbury, a 26-year-old journalist who is suffering from two different types of leukemia simultaneously, and has only weeks to live. He's using his remaining time advocating for more people to register as potential bone marrow donors, and the Southport Visiter is also taking up the cause:
The next blood donor session is on Thursday, June 26, from 2pm to 4pm and 5.30pm to 7.30pm in Holy Trinity Parochial Centre, Hoghton Street, Southport.

Please call 0845 7 711711 to make and appointment.

Labels: , ,

posted by Emru Townsend at  | 0 Comments | Links to this post

Message Archives

Where's My Local Registry?